EURORDIS is a unique, non-profit alliance of 864 rare disease patient organisations from 70 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research and policies.
The Public Affairs Manager – EU & National Integrated Advocacy is responsible for coordinating and empowering advocacy and outreach capabilities of national rare disease patient groups, notably National Alliances, namely by enhancing support to the advocacy activities of EURORDIS vis-à-vis EU Institutions. The Public Affairs Manager will be instrumental to ensure that the priorities and contributions of National Alliances feed into the planning and definition of advocacy activities, that feedback is regularly provided as well as guidance on the process to follow. Ultimately, the Public Affairs Manager will aim to reach a high level of integration between national and EU-level advocacy, by co-creating and implementing the tools and methods required to have a stronger impact and better policies for people living with rare diseases.
The position is based at the EURORDIS Brussels office. The EU and National Integrated Advocacy Manager works with the other colleagues dedicated to European or international advocacy, and works in close coordination with the Senior Manager of Relations with Patient Organisations (based in Paris).
Contract type: Permanent, full-time (38h per week)
Salary: 38 – 45 000 euros gross per annum + pécule de vacances + additional expenses covered by the employer
Please send your CV and cover letter in English to firstname.lastname@example.org.
Deadline for applications: 4 October 2019